Are you or a loved one recovering from a traumatic brain injury? You are not alone. According to the CDC, approximately 1.5 million people in the U.S. get a traumatic brain injury each year, and currently, more than 5.3 million people are living with TBI. Although recovery is absolutely possible, it can be long and hard, and survivors and families may need to access services like occupational/physical therapy, speech/language therapy, psychological, and/or social services.
Brain Injury Awareness Month is coming up in March, and in acknowledgment of those living with TBI, we’ve come up with an A-Z list of organizations and resources that may be helpful.
American Speech-Language-Hearing Association
Committed to ensuring that all people with speech, language, and hearing disorders, including injuries like TBI, receive services to help them communicate effectively
Bob Woodruff Foundation
Works to ensure that impacted veterans, service members, and their families have access to the highest level of support and resources for TBI.
Brain Injury Association of America
Brain injury research, education and advocacy programs through a national office, a network of state affiliates, support groups, and a helpline
National multimedia project offering authoritative information and support to anyone whose life has been affected by brain injury or PTSD
Brain Trauma Foundation
Focuses on conducting innovative clinical research, updating evidence-based guidelines, and working towards improving outcomes for people with TBI
Centers for Disease Control
Prevention and traumatic brain injury data & statistics
Centers for Disease Control – HEADS UP Program
All about concussions: signs & symptoms, prognosis, treatment, prevention, research, education.
Notice of clinical trials
The Concussion Legacy Foundation
Advocacy, education, policy development, and medical research
The Dana Foundation
The science behind how the brain works; responsible research & education about brain science
Defense and Veterans Brain Injury Center
Serves active duty military, their dependents, and veterans with traumatic brain injury
Facebook-based online TBI support groups
Type in “traumatic brain injury” in Facebook’s search to find the many TBI groups online
Head Injury Association of Northern Nevada (HIANN)
Voice of advocacy for brain injury survivors, their families, and caregivers in Nevada.
Aims to improve the quality of life for people affected by brain injury and to raise awareness about the importance of brain health
National Alliance of Family Caregivers
Supports families & caregivers of adults with debilitating health conditions. Offers programs & consultation on caregiving issues including free publications & online support, and a national directory of publicly funded support programs
National Disability Rights Network
Provides information and referral services to help those with disabilities find solutions to problems involving discrimination and employment, education, health care and transportation, personal decision making, and Social Security disability benefits
NIH / National Institute of Neurological Disorders & Stroke
Brain injury education, prognosis, treatment, clinical trials, research
National Rehabilitation Information Center
Collects and makes available disability- and rehabilitation-oriented information
Social Security Administration Office of Public Inquiries
Agency of the US government that administers the Social Security program, providing retirement and disability benefits to people in the US
State chapters | Brain Injury Association of America
Find locals chapters of the BIA
Resource support, financial assistance
Wounded Warrior Project (WWP)
Assists vets who have been severely injured in the conflicts in Iraq, Afghanistan, and other locations around the world
Zero to Hero | Child Brain Injury Trust UK
Raises awareness of brain injury in young adults
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